Resources

Lyme Disease Treatment Guidelines:

Two Schools of Thought

There are two Standards of Care, or sets of treatment guidelines, used in diagnosing and treating Lyme disease patients in the United States: one from the Infectious Diseases Society of America and one from the International Lyme and Associated Diseases Society (ILADS). Both are recognized by the United States Department of Health and Human Services, as they have each met the requirement of being based upon peer-reviewed, scientific research evidence. Click the link below.

Evidence-based guidelines for the management of Lyme disease.

Before deciding upon a specific treatment plan for a patient, medical professionals must take into consideration that the scientific evidence about Lyme and tick-borne diseases is still emerging. It may be very helpful to review all of the recent testimony scientists and physicians presented to a review panel during a hearing held to examine the 2006 Infectious Diseases Society of America's Lyme Disease Treatment Guidelines.

The hearing was held on July 30, 2009 in order to determine if the 2006 IDSA Lyme Treatment Guidelines reflect all of the worldwide, peer-reviewed scientific data and whether these guidelines need to be modified and/or rewritten, based on the evidence presented. Much of the scientific research presented pertained to the problems associated with the currently employed testing methods, the evidence that strongly supports the existence of persistent Lyme Borreliosis in some cases, and the treatment of Lyme disease. To watch the testimony, click on the TV on the link below:

http://www.idsociety.org/Content.aspx?id=15026

For additionial information, please read CALDA Executive Director Lorraine Johnson's excellent article:

Lyme Disease: Two Standards of Care

-NIH

Testing information

Click on a link below for more information about tests.

http://www.lymeinfo.net/medical/LDSeronegativity.pdf

(click on Seronegativity file on link above)

http://www.ilads.org/lyme_disease/about_lyme.html

http://www.drcharlescrist.com/testing.htm

http://www.canlyme.com/wb.html

Specialty Laboratories

IGeneX, 800-832-3200

http://igenex.com/Website/

Stony Brook, 631-444-3824

http://www.path.sunysb.edu/labsvs/ticklab.htm

Central Florida Research Labs, 863-299-3232

http://centralfloridaresearch.com/lab2/index.php?option=com_content&view=article&id=50&Itemid=58

Lyme and TBD

media resources

Under Our Skin (multi award-winning movie produced by Open Eye Pictures)

Cure Unknown: Inside the Lyme Epidemic - award-winning book by Discover magazine's senior editor, Pamela Weintraub. Recently named Best Book, 2009, by the American Medical Writer's Association.

The Lyme Disease Solution by Kenneth Singleton

Healing Lyme by Stephen Buhner

Coping with Lyme Disease by Denise Lang

Cell Wall Deficient Forms: Stealth Pathogens
by former Nobel prize nominee, Lida Mattman, PhD

Georgia Online Support Group

Georgia's Online Lyme Disease

Support & AdvocacyGroup:

http://health.groups.yahoo.com/group/georgialyme/

These online state support groups werecreated and are maintained by our good friends atCALDA (California Lyme Disease Association). There is one in almost every state. We applaud their efforts to unite the Lyme disease community.